4 yrs, 8 mths ago

Allergy to Nickel

Years ago I used to have my ears pierced but found out that I was allergic to the Nickel in Gold and Silver Earrings.

The allergic reaction caused huge lumps behind my ears, and when I went to the Doctor he recommended that I not wear earrings again, so I haven’t all these years.

How many of You have had an allergy to Nickel? The Question is should I get my ears repieced again, now that you can buy Nickel Free Jewellery from some good stores like Michael Hill.

60 comments 32 voices

Replies

  • 4 yrs ago

    I have the same problem with the nickel allergy. I had really nasty lumps which oozed and bled (yuck yuck yuck), but you can buy some nice earrings from chemists and jewellers that are nickel free, just ask and they can find them for you.

  • 4 yrs, 8 mths ago

    sootyblack_14 Thanks for letting me know and everyone else regarding shavers that some could be made with Nickle alloy.

    Never ever thought about having a rash on my legs could be from the type of razors that we use.

    Thank You much Appreciated.

  • 4 yrs, 8 mths ago

    I didn’t realise I had a nickel allergy until my ear piercings kept bleeding… I took out my earrings and it cleared up within a day… I then kept getting a reaction to shavers… Every time I shaved my legs I’d break out in bumps and rashes… I switched to a nickel free brand and haven’t had a problem since… It’s way more common than we think, but aren’t told about it… Thank you for bringing light to this!!!!

  • 4 yrs, 8 mths ago

    Ha ha ha ha Tin Drum, I think the comfort factor would totally be lost, but your enthusiasm is overwhelming.

  • 4 yrs, 8 mths ago

    It’s funny that I can wear anything in my ears, but my nose stud flares up if I use titanium, which is supposed to be a great alternative to other metals. Hopefully one of the alternatives works for you.

    • 4 yrs, 8 mths ago

      That -is- pretty weird!
      hmm, I wonder why? That`s really interesting.

    • 4 yrs, 8 mths ago

      Lisa359 Thanks for your reply yes I agree it is strange that you have reaction to your nose ring and not your earrings.

      Wishing you a Fabulous Weekend.

  • 4 yrs, 8 mths ago

    My daughter used to have a similar issue so I got her “Blomdahl” earrings they have medical grade plastic & also titanum.

    I got her to wear these for years until her ears settled and completely healed. Now she can wear gold without getting infections & rashes as such but sometimes her ears do still react slightly if wearing for weeks on end so I keep them out and just push them through every night to keep the hole there and when she goes out she wears gold earrings. Hope that helps.

    • 4 yrs, 8 mths ago

      Thank You ThisIsMe for your reply have never heard of Blomdahl earrings will have to look it up on the internet, appreciate your advice will think about these as an alternative.

      Have a Fantastic Weekend.

  • 4 yrs, 8 mths ago

    This is so interesting. Now I have an idea why some of my earrings cause issues. I really only wear between 2 or 3 pairs and they are gold as any others do cause ear problems.

    I did get my ears pierced – by a street vendor using a gun in Sydney – just under 50 years ago, and had terrible infected ears as a result. I thought it was just my ears reacting and had to use methylated spirits to keep them clean along with antibiotic ointment, and it took weeks and weeks to clean up completely, then only gold studs and that is what I have stayed with decades later.

    Now I know I might look for some more trendy earrings and coat the stem with clear nail polish. Thank you for this wonderful information.

    • 4 yrs, 8 mths ago

      Good to hear that you can still wear gold!

      Silver is never totally pure, it always contains varying amounts of other metals nickel included. So it will always bother someone with an allergy.

      Both Margi59 and myself are very allergic because we can`t tolerate silver either.
      And yes, chances are your allergy was triggered by the piercing process with the gun sadly. Allergies are little weirdos for sure. Something, somewhere can trigger it and you just don`t know.

      I have always been very mildly allergic (like certain jeans button would leave a bit of a rash) but nothing really bad. In fact I wore silver earrings all my life until early 20`s with no problem at all until the allergy hit suddenly and with a bang, all of a sudden I could no longer wear even my silver earrings. I got my ears pierced when I was about 6 or so and then added two more holes when I was 10.

      The clear nail polish thing works well, it is a cheap little trick. But I would not recommend leaving those you have coated in for long periods, such as overnight. I always take them out. It is a barrier, but you know, it is still not perfect 🙂

      Have fun getting your fashion earring game on Am1851!
      Have a great day! x

      • 4 yrs, 8 mths ago

        Thanks Tin Drum,

        I also have a really severe allergy to wool, anything woollen causes a real skin rash issue. I don`t think clear nail polish can help that though…

        Looking forward to a new fashion look now.

      • 4 yrs, 8 mths ago

        Now-now, don`t be defeatist. You just need a lot of clear nailpolish, a good dose of elbow-grease and have a good crack at it and you might be able to live your dream of wearing wool!!

    • 4 yrs, 8 mths ago

      Thank You for your reply never really thought about the fact that the ear piercing gun might have been infected to start with the ear piercing guns should be a lot cleaner these days.

      Will definitely look at using plastic backers when I get them redone sometime again soon.

      So many wonderful ideas much appreciated.

      • 4 yrs, 8 mths ago

        Hi Margi59!

        It`s not just the cleanliness of the gun really. With a piercing gun, you are actually getting the earring rammed into your earlobe, so think about how blunt the end of an earring stud it? Yep, that gets shoved into your ear. Way more tissue damage than a pointed surgical needle.

        But yeah, you definitely cannot beat a piercing studio`s cleanliness with a sterile, single-use needle. But that needle too would be stainless steel, which also has nickel in it as it is an alloy. But you should have less trouble because the puncture is swift and clean, and now that you know you can come armed with your nickel-free studs for them to put in immediately for you 🙂

        Did the gun actually give you an infection??!!! omg!

        And yeah, if you have any more questions about nickel allergies, I`m your gal! My body hates the stuff and have learned a lot of little tricks to navigate through life 🙂
        So please feel free to ask away, I will always try my best to throw in my two cents.

        Hope it all goes well x

      • 4 yrs, 8 mths ago

        Thank You TinDrum

        For your reply will definitely be checking out the studs themselves and the cleanliness of the gun for sure.

        At the moment I have lived for years without having my ears repierced because of the Nickel Allergy every time I see beautiful gold diamond studs or hoops I think how nice it would be to have my ears pierced again.

        I also have to consider that I have a few autoimmune disorders including Fibromyalgia as well. My body is always in constant Pain.

        Thank You for your advice much appreciated.

      • 4 yrs, 8 mths ago

        -BIG hug-

        You are most welcome 🙂
        Well you won`t have to give up your love of gold coloured earrings, I distinctly remember Wicked Sista brand having a lot of gold ones.

        I have Fibromyalgia too. (And pretty much my whole body hates me)
        Fibro is a s#&t of a condition. So I understand what you mean by being in constant pain -hug-

        I had left my ears unadorned for years as well, I just got used to them being bare. Until I cracked it one day and put my old solver earrings in and holy moly, quite literally in seconds my ears went nuts and it took days of steroid ointments to get them to settle down.

        We with the autoimmune problems have pretty twitchy allergy problems it seems. As if we need anything else on our plates than what we already have.

        One things you will never get from me is empty platitudes. I will never tell you to “”tuen that frown upside down”” or crap like that. Fibro sucks, Period. And I am sorry to hear that you have it. So if you ever want to talk about this stuff, I am more than happy to chat. I sort of keep things bottled up so maybe it would be good for us both.

        Keep well x

      • 4 yrs, 8 mths ago

        Thank You once again TinDrum

        For your reply (((Hugs))) so glad that you understand Fibromyalgia most people don`t at all and tend to think, because you look alright that you are alright.

        Fibromyalgia is very much the hidden illness only someone who has it can ever understand the levels of Pain that one can suffer from.

        Have found a Fibromyalgia Forum that is very good people understand completely. It`s called http://www.fibroteam.com hope that you find it and decide to join the Group.

        It certainly helps me. Many People unfortunately with Fibromyalgia can have other autoimmune disorders and illnesses such as MS.

        I do Appreciate your advice.

        Wishing you a Lovely Evening and Many Blessings Gentle Hugs

      • 4 yrs, 8 mths ago

        Pleasure Margi!

        Fibromyalgia is just plain awful. And yes, as you say, it is invisible and you don`t `look` ill necessarily. It is especially horrible when you are young.

        Thankfully Fibromyalgia is being looked at more and more seriously even though there are still plenty of people (some you can`t blame because how could they understand) and sadly there are doctors who “”don`t believe”” FM exists. But thankfully there are less and less of those around.

        I am going through a bunch of weird stuff, I`m only 40, but OA is creeping into my body, various neuropathic problems, hypermobility. In the past 6 months my legs have decided to screw with me and now at 40 I use a walking stick. It is black and sparkles in the sun though 😀

        I hope you have people around you who appreciate what you have to endure everyday and are understanding. Sometimes the best thing (other than reeeeeeeaally strong painkillers) is a warm, genuine, understanding hug.

        hehe! I am on that Fibro website as well! I tend to loaf around and read, I am pretty quiet and haven`t chimed in a lot. But it has been quite helpful for sure! I`m “”Follies”” on there if you want to add me. No pressure whatsoever ok?

        Thank you for writing back, I really appreciate it 🙂
        Have a lovely weekend, be kind to yourself!
        hughug! x

      • 4 yrs, 8 mths ago

        That must be so difficult for you, TinDrum. I`m really pleased you have a sparkly walking stick though.

        Also pleased you and Margi have a helpful web site to go to. Take care, both of you.

  • 4 yrs, 8 mths ago

    misfortune8 beat me to it 🙂

    I forgot to mention Titanium. My wedding ring is titanium and I have had no problems 🙂

    And as misfortune8 mentioned, you can buy non-metal backings for earrings. For this I just go to good old trusty Ebay. I bought 200 for a couple of dollars, they are the small ones, and you can buy bigger flat back ones for heavier earrings that need to sit straight. Both made of silicone. I got them from overseas, but I am sure there are Australian sellers (they sell basically the same thing but with less of a wait time 🙂

    The clear nail polish things has helped a lot, I am wearing all sorts of earrings now. Mind you I never leave a pair in, I always take it out.

    Good luck Margi! x

  • 4 yrs, 8 mths ago

    I’d hate not having pierced ears, Margi! There are hypoallergenic options, but it’s up to you. I should mention that I don’t suffer from nickel allergy.

    Titanium is supposed to be hypoallergenic: I see titanium jewellery for sale fairly often.

    If you try TinDrum’s tip about clear nail polish, you could use clear plastic earring-backs. I’ve seen them in multi-packs at many chemists.

    • 4 yrs, 8 mths ago

      Appreciate your advice about the clear nail Polish sounds like a great idea, will try it.
      When I go to the pharmacy I am going to ask them if there jewellery for getting your ears pierced are Nickel Free.

  • 4 yrs, 8 mths ago

    I am incredibly allergic to nickel.
    You are probably very allergic to nickel if you are having reactions to silver and gold earrings. Especially the gold.

    As Harmony Queen has pointed out, they have nickel-free earrings at pharmacies, I believe the brand is called ‘Wicked Sista’. All their stuff is nickel free.I have a few of their earrings, no problems with them. Look online of course for other brands too, because nickel allergy is common enough to have a market for this sort of jewellery.

    Another thing that works for me is using clear nail polish to cover all parts of the earring that your skin would come into contact with. I do this to the inside of rings, bracelets etc. And so far so good. Again, I stress I too am -very- allergic to nickel and I can get away with this little trick.

    Stainless steel will also cause a reaction if you are very allergic to nickel.

    I would also go for the needle option, yes it is more expensive than getting the gun, but for allergies it is worth it and piercing places would definitely have the proper earrings for you.

    Nickel allergy sucks. Right now I cannot get a wrist replacement that I need badly because the implant I need (only 1500 people have them worldwide) contains nickel and since the surgery is so invasive my surgeon will not risk the implant and the possible reaction I could have.
    So I am stuck with chronic wrist pain.

    I hope this helped somewhat.
    x

    • 4 yrs, 8 mths ago

      Thank You for Your advice very much Appreciated.

      • 4 yrs, 8 mths ago

        Pleasure, hope it helps!
        Have a lovely day! x

      • 4 yrs, 8 mths ago

        Love your advice TinDrum!

        I second going the needle route.

        Never ever get piercings done with a piercing gun.

        xx

      • 4 yrs, 5 mths ago

        Hi!

        Sorry for being so quiet for so long! (my notifications had also cleared themselves so I couldn`t find things that I had missed, hence replying to you here!)
        Got pretty sick and had new medical diagnosis and I kind of went to ground :/

        Hope you have been well!
        xo

      • 4 yrs, 4 mths ago

        Hi there TinDrum,

        I too went to ground!

        I finally got back on my proper meds (ADHD and antidepressants) so things are looking up!

        It`s amazing that I get proper sleep and wake up feeling refreshed when I take my Ritalin diligently.

        I hope you are travelling well and that the new diagnosis hasn`t thrown you!

        xx

      • 4 yrs, 4 mths ago

        HEY THERE!

        big hug!

        I am happy to hear that you are doing better dahlink 🙂
        Getting meds right is half the battle, I too am on a stack of them so I getcha.
        And sleep! OMG good sleeeeeeeeeeeeeeeep!!!! How amazing is it?
        I am SO happy that you are getting some proper sleep. It just f%^*s you up completely when you don`t sleep well. Especially with mood disorders (Bipolar 1 over here :/

        I got Ehler`sDanlos Syndrome thrown at me, still digesting. I now can officially say that every single part of my body is f*%!ed hahahaha. From my toes to my brain bahahah

        Basically I am 40 and have the innards of a not-overly-healthy 65 year old O_O

        Sorry for the dump there lovely lady, but I have not really talked about it to anyone.

        MUCHOS love to you and yours!
        xx

      • 4 yrs, 4 mths ago

        Hola TinDrum,

        Big hugs to you!

        I have never heard of EDS- off to read about it!

        I hope the diagnosis ix a bit of weight off your shoulders.

        Sleeeeeeeep! (I say at 4:30 in the morning)

        I””ll be online a bit more over the next few weeks!

        Xx

      • 4 yrs, 3 mths ago

        Hello Lovely!

        Hope you have been doing as ok as possible -squish hug-

        I am SO sorry for the long delay in replying. Cleaning house for inspection = still recovering weeks later. effing stupid body….

        awww you are such a sweetie -massive hugs-
        Thank you for caring and even reading up on it! You are just frikking awesome!

        The diagnosis… well it all sort of makes sense now. All the weird stuff going on inside my body now make more sense. It sucks, I`ll be honest, and also I think I am still dealing with the diagnosis. But I think it is the straw that broke the camels back for me. The list of my medical crap is not so long that it almost seems ridiculous. So this last one, the EDS really kicked me in the guts. I`ll leave it up to time I guess, no other choice 🙂

        Keep well and be bad!
        Talk when and if you are able, zero pressure from my end
        xx

      • 4 yrs, 4 mths ago

        Just gonna jump in here!

        Hello fellow Ritalin taker, glad it’s helping you with everything (it’s good like that).

        AND

        Hello fellow bendy wendy! Wishing you a day of no subluxations and minimal discomfort.

      • 4 yrs, 4 mths ago

        Which version of EDS are you the lucky custodian of?
        I`m a EDS Type2.

        I am very happy that you jumped in there! Thank you for your lovely comment, certainly feels much cosier not being “”alone””, especially with a new diagnosis. SO CHARS DAHLINK!! xx

      • 4 yrs, 4 mths ago

        My rheumatologist doesn’t think getting tested for EDS is something that would improve my current treatment, I have lupus, lol, I’m just incredibly hyper mobile. Heh!

        I kinda subluxed (or pulled a ligament?) my right hip a few weeks ago, and it’s given me grief ever since. Doesn’t help that my right ankle has been sore and swollen most of the year, it just forking hurts!

        Spent most of my teens and all of my 20s on the ouch train, but since hitting my 30s, it’s just getting worse and worse. (Mind you, the pain is more intense, but I think I just tolerate it a lot better.)

      • 4 yrs, 4 mths ago

        Heya!

        I didn`t get tested, same reasons here too. And also there are a couple of variants where they haven`t isolated the gene. Because my symptoms were so specific they were able to nail down which type.

        How did they find out what was ailing you? Good doc?

        God, lupus too! big hug
        Seems like there is always a little auto-immune disorder buddy accompanying EDS. As if all the EDS stuff isn`t enough by themselves, just all the stuff that comes with it as well like IBS, GORD, jaw problems etc.

        I`ve got Fibro for added fun times. But I`m learning to be kinder to myself. Chronic fatigue: ok go have a nap. Hip pain: sit the eff down. hahaha. I`m still learning 🙂

        I understand what you mean, looking back I cannot recall a time (I`m 40 now) when I wasn`t in pain. It just became the norm, like white noise. My body started to fall apart around 25 and yep, it has just gotten worse. And yeah, just as you said, you just learn to tolerate the pain. Daily painkillers and Lyrica help me along. I don;t think I could function at all without them.

        EDS is just soooooooooo frikkin weird! When you think about what it actually is and does it is truly horrifying. Everything is collagen. And this s.o.b is screwing all of that up in your body! Nasty little s#!t. I`ve had all sorts of weird internal organ problems as well from it too. O_O

        I hope today is kinder to you! Thanks for reading my essay. bahaha. If you see me around, it`s just how I write ^-^
        xx

      • 4 yrs, 4 mths ago

        Oh gosh, I’ll have to reply in essay format too, but for fatigue’s sake, let’s keep it short and sweet.

        Musculoskeletal symptoms started appearing in childhood as “growing pains”, got told I had arthritis at 14, Lupus at 23, been on treatment since (I think Plaquenil is literally the only anti-rheum meds working for me), umm, lots of painkillers and psychiatric drugs keeping me afloat and alive, a bit of exercise. I’ve had a permanent headache since 2007 complete with TMJ, dysport injections help so much, I also look like I’m barely in my twenties, so people think I’m too young to have these issues, probably because my skin is all stretchy and smooth. 31 feels horrible.

      • 4 yrs, 4 mths ago

        HUGS!!!

        Please don`t feel any pressure whatsoever to reply in essay format 😀
        My fingers just keep up with my rambling thoughts hahaha

        I must admit, typing that essay took the wind out of me too. This is the sort of stuff people don`t understand: typing can knock you about!

        Jesus! That is quite a horrid ride you have had there lovely lady! I`m happy that you got help early on if that is any `consolation` I guess. Where would we be without our precious, precious meds huh? They definitely keep me ticking as well. Both physically and with the Bipolar as well.

        I am nearly 41 and nobody believes my age either! At most I get told 30. I guess we should take the good with the lots of bad, again, as a consolation prize 🙂
        I encountered the same thing as you: I looked “”too young”” to have any of these problems. Drs didn`t even bother to check my blood pressure until I went in one day feeling like I had an axe sticking out of the middle of my skull, then they finally checked it and let`s just say they were surprised I didn`t have a stroke O_o

        A few months ago I had to start using a walking stick. And again, just because I am sick, doesn`t mean that I walk around in track pants not caring about my appearance. I dress well and use make-up, I try to keep my spirits up by doing those little things for myself, like using nail polish etc.
        I find I get two types of responses from the public: most are lovely and kind when they see the walking stick and some literally give me frikkin death stares! WTF?! Seriously? Yep a$$hat , my stick is a fashion accessory. Not that my hips are screwed and have OA on both my SI joints or that walking hurts. nahp, it`s to match my outfit. GAH!

        Although good thing with it is that people gtfo of your way on the bus and you get to sit in the “”disabled”” seats! Silver linings dahlink, silver linings! Bahahahah!!!

        You mentioned that you have TMJ. Here too. Please (when you feel you are able, no pressure!) could you tell me about the dysport injections. I really need to do something about my jaw, it is killing me, am sick and tired of it.

        Love your purple hair gorgeous lady! I think we have similarities: we are in constant pain, but dayyum! Look at your amazing smile! Your eyes are smiling too. We battle on but damned if we`re getting taken down.

        xx

      • 4 yrs, 4 mths ago

        Don’t get me started on disability rights! I’m an angry, ambulant cr*pple. Just want a minimal pain day with access and no judgement as to why we need the access.

      • 4 yrs, 4 mths ago

        Hey rivetlicker and TinDrum,

        Are you able to access NDIS?

        I am in the process of getting my supporting documentation together.

        It`s annoying they don`t cover ADHD, anxiety or depression.

        There is a private FB group called Accessible Australia you could join if interested.

        Rivetlicker, there is another private group- Adults with ADHD Australia, I find it incredibly supportive!

        ❤️

      • 4 yrs, 3 mths ago

        I have no idea whther they could or would help me. I guess it would be worth checking.
        Like recently I bought a little foldable step-stool for the shower hehehehe. Just to make even that simpler and not to hurt my body .

        I wish you all the luck in the world and I hope you get everything you need to make your life easier and more comfortable. Please let me know how you go with them!!
        I have my fingers crossed for you!!!

      • 4 yrs, 4 mths ago

        I’m not even going to bother with the NDIS. I have the supports I need in place. I mean, it would be better if I did use the NDIS, because that means there would be funding in the future. I think maybe for household services, if anything. If the NDIS could fund an accessible new car for me and my family then I’d use it lol.

        Knowing how the government is running things now, I don’t think the NDIS is going to last unless there is some huge reform.

      • 4 yrs, 4 mths ago

        I hear you…

        I need it for my equipment and aids as well as household support/allied health/botox injections etc.

        Don`t get me started on the government…

      • 4 yrs, 4 mths ago

        I thought I replied to this, but now I remember I didn’t finish it!

        I see a neurologist for headaches (chronic tension and lately, weird symptoms like visual disturbances and harsh tinnitus spells), and while seeing him, I’ve been using dysport in my forehead and masseters to ease the headaches. It works well for me, but it’s costly (cosmetic clinics, RN injectors).

        My last appointment, I was begging for him to do it for me. He gave me the cost of $300 for a 200u vial of dysport through the hospital, but he believed that if I could get compelling medical support from other doctors I see, he could lodge a case for the hospital to cover it.

        I see him next Monday, so here is hoping my rheumatologist sent his supporting letter so we can commence treatment ASAP. Three months since I got my last lot and my forehead is moving a lot!!!

      • 4 yrs, 3 mths ago

        How did you go with the rheumatologist sweetie?
        I hope you got the supporting documentation for the treatment!!
        xx

      • 4 yrs, 3 mths ago

        Nobody can do anything. There’s just all these technicalities and it’ll still be cheaper if I go to a cosmetic clinic. I did start taking a beta blocker because I asked him if there was anything else.

        My Rheumy was actually pleased with my blood work this time around. My lupus isn’t over the top anymore since being on plaquenil. 🙂

        Bloody doctors feeding conflicting information.

      • 4 yrs, 4 mths ago

        Hear-Hear Pain Sista!

        I consider myself one of the lucky ones who managed to get disability pension about 8 years ago. So I am very, very thankful for that. Otherwise I have no idea wtf I would do. I honestly probably would not be amongst the living, especially with the mental health issues on top of the physical.

        I hope us chatting isn`t upsetting for you in any way.
        I thank you for your openness and honesty xo

      • 4 yrs, 4 mths ago

        We definitely are very lucky in that respect – many people aren’t on the DSP when they should be. Some of the qualifying terms are weird, because it’s not only having a diagnosis, but being 1) compliant with treatment (reasonable), and 2) stabilised (not reasonable). Now, you can ask anybody with a condition like ours if they have any stability in their condition, and the answer will always be no, because it’s all so unpredictable. This is why you need to ensure they know about your worst days, and how you deal with them. Most of the time, I personally don’t deal with them well – I’m just in bed, drugged out, tired, depressed, can’t walk, barely have enough energy to eat. The comorbidity or mental illness sparks a lot of concern too. I’m not sure which came first, the depression or the arthritis.

        Most of us will never be able to work a traditional job (heck, there aren’t even enough of those jobs for ableds), so what makes the government think that disabled folk (particularly ones affected by chronic illness) are suitable to even be in the workforce? It’s a sad reality.

        I’m just passionate about disability justice, but alas, I can only be vocal from my bed! I have a couple of blog posts you might like!

        The original:

        https://rivetlicker.blogspot.com/2018/10/10-shitty-things-nobody-tells-you-about.html

        The sequel:
        https://rivetlicker.blogspot.com/2019/08/10-more-shitty-things-nobody-tells-you.html

      • 4 yrs, 3 mths ago

        Hi lovely!

        I hope you are keeping well as possible.

        I am so so very sorry that I have yet to reply.
        While we were having this wonderful conversation I was in the middle of getting ready for house inspection and I totally destroyed my body in the process. Honestly, I am still recovering weeks later…. effing stupid body.

        I will give your post and blog posts the proper time and thought they deserve. Thank you so much for sharing all of this with me. Speak soon I promise xx

      • 4 yrs, 3 mths ago

        Hey, washing the dog renders me useless for like 3 days. Feeling you on that xx

        Have a great holiday and save your spoons for the important things!!!

      • 4 yrs, 2 mths ago

        Hello Lovely!

        Ii will always be straight up ok?
        I am so very sorry that I went silent for so long. I don`t think I was quite “”over”” the acceptance phase of being diagnosed with the EDS. And I think us talking about it all… well I guess I ran away from it. I hope that it makes sense. I promise I didn`t do it because I am an arseh**e.
        In fact I finally have it in writing from my ortho, I have not even touched the letter let alone read it. This was nearly a week ago now.
        So yep I`m well and truly stuck before any sort of `acceptance` phase.

        Again, please accept my apologies xx
        Just not dealing with it very well I guess.

      • 4 yrs, 2 mths ago

        The last few weeks have been a bit jaded, so it’s okay! You never apologise for your communications.

      • 4 yrs, 3 mths ago

        Thank you so much for understanding lovely lady 🙂

        I need to be much better at spoon rationing, I effing suck at it. I go all in and then wonder why the hell I am on my arse re-cooperating for so long.

        I found these two articles recently, veeeery interesting reading indeed
        https://www.abc.net.au/news/2019-12-04/study-shows-chronic-pain-changes-the-brain/11760024

        https://www.practicalpainmanagement.com/pain/other/brain-injury/brain-atrophy-chronic-pain-call-enhanced-treatment

        I shall talk to you properly soon
        (I am also finishing writing up three things for the Trial Team, so my hands are screeching at me bhahaha)
        xx
        Have a a great holiday! Hold those spoons close 🙂
        I hope you have been entering the 12 Days of Xmas funzo on BH. A bit of joy 🙂

      • 4 yrs, 4 mths ago

        Really interesting post. Will definitely read your blog posts.

      • 4 yrs, 4 mths ago

        BAHAHAHA Bendy Wendy nice!
        Allo thar!

        Hope you are well and nothing is popping out of place today 🙂
        Sadly the bendy is gone and I have been left with the effed up ligaments, other weird innards s#it and spreading OA :/
        It used to be pretty fun when I was younger though 🙂

        xx

      • 4 yrs, 8 mths ago

        Thanks Lucy 🙂

        Nickel allergy sucks and I just wanted to pass on stuff that I learned the hard way, so that Margi59 can skip the sucky steps.

        Hope you are doing ok x

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