5 yrs, 8 mths ago

Implanon – Research it first – This is my story

How many of you have had the implant put in?
How many had it taken out prematurely?
And the one question I want to know the most is – how many of you had it put in a second or third time without massive changes in side effects? Has anyone experienced zero side effects at all?

I ask all this because I am nearing the end of the 3 years of having the implanon in. The last 6-12 months have been completely insane as far as my body processes go.

I personally had not made the connection between what I have been experiencing and the implant until very recently, and I can tell you, not ONE single doctor came to this conclusion either – and Ive seen plenty of them. But through a wide range of research, reading forums of others experiences, and checking legitimate studies done on this contraceptive, listed on Government websites, it finally clicked that this was the likely cause.

So, when I first had it put in nearly 3 years ago, within a month or so I stopped bleeding completely – and haven’t had a period since (statistically 20% of all women who get the implant will bleed 80-100% of the time and need to have it removed). I’ve always truly hated having to deal with periods so I was absolutely thrilled, it was a weight off my shoulders…

Then came the cystic acne – like most teenagers I had experienced pimples, but was never faced with bad acne (I had also been on the pill since I was 17 until I got the implant put in). Suddenly I had giant cysts on my chin, around my nose, in and behind my ears – I quickly made the connection between this and the implant, but in my opinion, it was totally worth it. It wasn’t constant and it wasn’t excessive, it would just flare up every now and again. That I could live with.

Then came the seborrheic dermatitis. (What I have noticed since then, is that the worst of the flare ups always occurred when I was going through a particularly stressful period of life). My nose was both scaley and peeling, while being so oily I couldn’t get makeup to stay in place for more than an hour or two. I had pimples come up all over my scalp under my hair, which increasingly became oily AF and if I didn’t wash it constantly the pimples would get worse.

Yet, all of this would happen in flare ups, so I was willing to deal.

Fast track to now. I had my oestrogen levels checked last week and they were that of a woman going through menopause.
For the last 6 months I’ve intermittently had my hair falling out (turns out a total change in hormones can do that to you – keeps your hair in the wrong phase), it’s also dry and brittle – I recently learnt that the hormones your body secretes during menstruation are those they keep hair healthy and, well, attached to your head.

The past month I have had the worst acne of my entire life (I’m 28 so could not be more thrilled about that one). If you know any women who have hormone imbalances, just ask them about all the weird and wonderful symptoms they might be experiencing

Symptoms that are never once mentioned that can occur when your hormones are completely out of balance (because I have had them):
– Brain fog – focusing is difficult, you easily forget things, tasks that were easy before require a lot more energy and time
– Night sweats – much like hot flushes – which are also possible
– Fatigue – I don’t mean, “oh I didn’t get a lot of sleep last night, I’m tired”, I mean regardless of the amount of sleep you get the most minor of tasks leave you ready to lie down on the ground
– Anxiety and depression – Especially if you already have a propensity for it, it can intensify. I can’t walk through a shopping centre on my own because it makes me so anxious, it has made it extremely difficult to hold down a job like a normal person
– Muscle twitches and cramping
– Neck and shoulder tightness – surprisingly, some studies have linked this with having the implanon(though not as common as other symptoms)
– Trouble sleeping / insomnia
– Oily hair and skin
– Heart palpitations
– Difficulty regulating body temperature

My concern lies with the fact that over the years it is suppose to release less and less of the hormone etonogestrel. But my symptoms have been increasing in severity.

The release rate is 60-70 μg/day in week 5­ 6 and decreases to approximately 35-45 μg/day at the end of the first year, to approximately 30-40 μg/day at the end of the second year, and then to approximately 25-30 μg/day at the end of the third year.

Thereby the levels found in my body should be decreasing, moving ever back towards a more “normal” range. But it seems to be doing just the opposite.

During this time I was also found to have liver cirrhosis. This was after I started getting really bad Gastro problems, post a particularly strong round of antibiotics. Further research has indicated (to me) that this may not be entirely unrelated.

Because ENG (etonogestrel) “is metabolized in liver microsomes by the cytochrome P450 3A4 isoenzyme. The biological activity of ENG metabolites is unknown.” Source: The FDA website – https://www.accessdata.fda.gov/drugsatfda_docs/label/2009/021529s004lbl.pdf

After doing some research I found out the first generation implant “Norplant” was pulled off the market after several lawsuits because it caused permanent blindness in some women turning some women.

I’m not saying the implanon is bad, some women don’t experience any symptoms at all. I’m just saying before you decide to get one, really do your research first, as there exists the possibility that it could irreparably alter your body and the way it works.

If you have your own story, be in positive or negative, I would love to hear about how it worked for you or if you came across any symptoms in particular

19 comments 32 voices

Replies

  • 5 yrs, 7 mths ago

    I got it out last weekend!
    I swear my hair looks and feels healthier already. Acne had a pretty much instantaneous improvement and I also feel slightly higher energy levels!
    I’ve switched back onto the pill, this time I’m giving yaz flex a go. Its an extended cycle pill with the no pill days (the sugar pills in other forms of the pill) is only 4 days long and you choose when you have your 4 day period in every 120 days. So basically you can choose to have as few as 3 periods a year or up to 13.
    Interested to see how this pans out

    • 4 yrs, 1 mth ago

      Hey, I`ve been experiencing precisely the symptoms you experienced on the implant and I am so exhausted from the oily hair problem, I really just want to get it removed and switch to the pill. Should I do that, and are anti androgens my best go.

  • 5 yrs, 7 mths ago

    Geez Louise. I would looking for some other form of birth control.

  • 5 yrs, 7 mths ago

    Should watch the bleeding edge (netflix). It goe through the FDA approval process. Its about ‘Essure’ but its still the same process for all other medical devices in this category.
    Somewhat concerning.

  • 5 yrs, 8 mths ago

    Hi there, sorry to hear about your troubles. What you describe about implanon are pretty common side effects. I am surprised your GP did not discuss them with you before putting it in you.
    Implanon is progesterone only contraception. I really much prefer combination estrogen and progesterone contraception, and certainly the newer generations do not have the acne or oily skin issues. Only thing is combination hormonal contraception only comes in pills which would be an issue if people are forgetful.
    Otherwise, like the other member mentioned, mirena is much more tolerable than implanon.

  • 5 yrs, 8 mths ago

    i had a friend who suffered back pain after putting the implanon in. I went for the mirena because I was breastfeeding and wanted something with more local effect. Though your story is an extreme case, I think the quality of our gp is also decreasing. It seems like with the pay freeze (bulk bill fee) they seem to care less about people and more about quota and money.

  • 5 yrs, 8 mths ago

    I think the problem is that every body reacts to specific contraceptives in a very unique way that is nearly impossible for doctors to predict, because hormones play a very complex role in every facet of our functioning. I don’t necessarily think that’s a lacking on the part of the method or the doctors, simply that medical science doesn’t quite understand our bodies as well as we are led to believe and so we have to trial and error sometimes.

    The Implanon served me absolutely perfectly for 5 out of the 6 years I had it – my best friend has had it for the same amount of time and still loves it going into her 7th year now. She and I both never had side-effects or really any type of issues with or linked to the Implanon at all.

    Pills on the other hand… I’ve tried so many different pills and they have absolutely destroyed me. One made me so depressed I didn’t want to leave my bed. Another gave me mind-shattering migraines. Another caused muscle spasms. All those things I never had prior to those pills – or after I stopped them, and set on right after start of use. Again; every body is different. Those are pills that the majority of women seem to be very happy using. That’s just my unique biochemical makeup.

    I say 5 out of 6 years because I have always had extremely heavy periods (since they started at 12 years old) and the Implanon initially made the periods less heavy, but somehow in the last year of my second Implanon started making my periods worse. Probably because I am 31 now and my hormone levels are changing and very different from when I was 24/25.

    I am now on the Mirena IUD and am in love with it. It has no side-effects for me apart from actually IMPROVING my control over my moods in general, which is great.

    I don’t think the awareness issue lies with the Implanon per se. I think the problem is that doctors do not take the time to tell us, from moment ONE, all the options we have and that it’s okay to trial and error and you don’t have to marry your birth control. I was put on the pill at 15 for my heavy periods with no questions asked. They never gave me options. They just put me on the pill. As a 15 year old, when all the magazines talk about is the pill pill pill and nothing else, you don’t question that. It’s moreso that I believe medical science needs to focus more on not defaulting when talking about birth control, and believing women when they report side effects – and encouraging women to try different methods.

    Also generally annoyed that we’re expected to be grateful that we have birth control at all when the side effects are as severe as they are. There seems to be no sense of urgency in research to improve that, and there seems to be no rush in developing an effective hormonal birth control for men.

    • 5 yrs, 8 mths ago

      Really not sure trial and error is good enough when it comes to your health. This is marketed heavily and doctors were more than likely provided adequate reasons to push the contraceptive. No one should be advocating something if it isn`t fully understood the full implications of it. period.
      No pun intended.

      I definitely find that intriguing, it should be exactly the same hormone, released into your body exactly the same way. So why do so many women have different adverse reactions with second or third implants I wonder. I just feel that these shouldn`t be marketed and pushed heavily into usage when they don`t understand the why`s around it. It`s concerning

      I don`t think doctors know, and I certainly don`t blame them. One GP cannot possibly know everything drug, every drug interaction outcomes, every study performed and the outcomes and still have time to actually see patients. I think the problem lies more with drug companies and also drug regulations and requirements. But doctors still need to really be across these things. But also I`ve read many of the factsheets for these implants, and very few suggest most of the symptoms many women have experienced. However you go look up the outcomes of various trials of these drugs on a Government website (FDA for example) and you get a slightly different picture painted – and thats even on small scale trials.

      I whole heartedly agree! But for the companies that make these things, we`re just walking dollar bills…

  • 5 yrs, 8 mths ago

    I’m sorry to hear that this has happened to you… Doctors don’t seem to be able to give women correct guidance when it comes to contraception… I have read so many stories and spoken to heaps of women who have experienced something like this and they’ve been told that it isn’t the contraceptive device, but something in their heads or they’re making it up… There needs to be more education abut this sort of stuff!!! So, thank you for sharing your story and bringing awareness to this seemingly silent, but important issue…

    • 5 yrs, 8 mths ago

      Agreed!! There`s not enough research going into this sort of thing.
      I went through a stage where I was getting crazy itchy – it felt like tiny bugs crawling all over my skin. I now think it was directly related to the implanon,(apparently hormones can do that) because there was absolutely no other reason for it. But, unsurprisingly, friends and family thought I was getting a little unhinged at the time (also had some bad mould problems where I was staying so I was an unhappy camper)

  • 5 yrs, 8 mths ago

    This story is just awful, so sorry to hear. My sister had implanon and had it removed one year later since 8 day heavy periods were easier to cope with than the side effects of implanon. She also bears the scar, from the butchery to get it out! I too have not heard any positive stories about this contraception method. Thanks for sharing this story.

  • 5 yrs, 8 mths ago

    acain, years ago I had the Implanon and after a couple of months I had it removed. Oh, it was a great birth control, ask my hubby. I was so moody all the time that he didn’t want to come near me. I felt like I had PMS 24/7. No where near the terrible issues that you’re dealing with, but was enough to want that thing out of my body. I also have not heard one success story with it.

    • 5 yrs, 8 mths ago

      Yeah it has SO many wide-ranging adverse reactions, it`s really surprising it hasn`t gotten more bad press over it

  • 5 yrs, 8 mths ago

    I have used the implanon, for the full 3 yr duration and wanted to have it removed many times!
    For me the biggest issue and unexpected side effect was that I kept bleeding heavily and frequently; it wasn’t like a normal heavy period; I would bleed heavily for a week (sometimes over a week!) Have a week maybe two of nothing then it would happen again! For another week! Sometimes it wasn’t at all painful, it was just heavy bleeding. Others it was quite bad.
    I experienced noticeable weight gain. I was a size 8-10 and went up to 14. No matter what I did I could not budge the weight gain!
    I experienced extreme tiredness. To the point of being very lethargic I struggled to focus on things, accomplish things, go anywhere.
    I’m sorry to hear you have had a awful experience as well =(

    • 5 yrs, 8 mths ago

      You`re a stronger woman than I. I couldn`t have handled the bleeding frequency! But holy hell how bad is the tiredness!? Some days I`m like zombie with brain fog, just can`t think clearly!

  • You must be logged in to reply to this topic.