Endometriosis problem

Thank you for your experiences 🙂 . At this current moment , she is still undecided as she has other issues and hopefully will make some sort of decision sooner or later and have shown your responses to her . Thanks much again , really appreciate the feed back .

Has she had a second opinion? I’m finding her doctor blasé if they tell her to look up the information herself…sorry maybe it’s how I read it but I would speak to another as its a huge decision and she must understand it and decide if it’s best for her. Best wishes whatever she decides and I hope her pain disappears soon xx She is strong.

I normally don’t discuss my private personal problems on the internet but endometriosis is a mostly private problem I struggle with. I have severe endometriosis, I was diagnosed pretty quickly (even thought I suffered for years) and have had 2 major surgeries in 2 years. This year I was considering a hysterectomy (I’ve had every hormone treatment available but it made my endometriosis worse) but apparently I am to young to have one and kind of glad I didn’t (I am in my mid 20s and have had no children), I will consider one in 10 or so years of my endometriosis is still so bad. If your sister is unhappy or unsure tell her not to be afraid of asking others or even searching for another gynaecologist or even doctor (my doctor is amazing!) I’ve had 3 gynaecologist (my last one my best and current) and it makes things so much easier when you have a gynaecologist who knows what their doing and who has their patients best interest at heart. Google will not help! It only made me more scared and upset. Even if it takes her a while to find another gynaecologist or someone else who knows what a hysterectomy involved it is so worth it!

I suffered terribly with endometriosis for many years, in the early days, the pain was bearable with the help of medication. I had several operations to have the problem dealt with, but it always returned, and seemed with more vengeance. I had my children at a young age, and I am so glad that I did, otherwise I just never know if I would have had them because of the medical condition.

When my gynaecologist told me that it was best I had a hysterectomy, I was scared. My specialist filled me in on all the risks and that. I was not planning on having any more children, but it scared me, that I would not be a women. I was in my late 20s. I put it off for years, until finally, I had had enough. I was taking way too many pills to try and manage the pain, still in agony, doubled up in such pain, with no real relief.

After the surgery it was a rocky road for recovery, because I had c sections, they did the histo. the say way. Took months to recover, and silly me, thought I was well enough to vacuum, well not, tore internal, and took an extra three months to recover.

But, it was the best decision I ever made, besides getting married and having lovely children. I have not looked back since the operation and recovery. My health returned, so did my fitness and my life, I felt like a new person. I was left with my ovaries, so I could go through menopause naturally and at the right time.

Give your sister-in-law my best wishes, I hope all goes well for her. As for her surgeons bedside manner, telling her to google it, that is not good. They must tell the patient risks etc. If my surgeon had told me that, I also would have gone for a second opinion, it is a major decision one has to make.

My sister-in-law had a full hysterectomy due to the worsening of her endometriosis, and she’s so happy now that it’s been done. She’s healthy and feels free, no longer having ongoing worries or experiencing pain. It was the best, most positive and life-changing experience for her.

I do think it’s bad that the Doctor told your sister-in-law to just google the information – It’s rude he told her to look it up herself – That kind of response would give anybody more than doubts as it puts a very negative spin on the whole thing, and on the way she’s being treated, and I know it would certainly make me want to question everything.
With a more supportive and caring Doctor who’s happy to share with her the detailed information she needs, I feel she’d be much more comfortable and better equipped to make her decision.

A second opinion is always a good idea.

I don’t know of any other treatments that actually successfully get rid of endometriosis – especially a worsening case of it that’s bad enough a hysterectomy has been suggested – But could she be viewing the surgery as a “last resort” when maybe it’s the only real and positive answer? It is very daunting, but she may change her view if she has a better Doctor and if she finds out that perhaps the surgery and end result is so much less frightening than she thinks?

I wish her all the best xx

Oh dear give her my best of wishes, I too went through all of this at the age of 35, I did have two children by this time so that was not a consideration . I ended up having to have the operation as I left it and left it till I was too sick and was taken into hospital as an emergency. I had the operation and Oh boy what a difference, I got so much healthier very quickly and no more period pain or heavy losses I had to have my ovaries removed too as it is not just a hysterectomy , they called it a full one…made a difference to my ups and downs too, I w as soo much happier. Yes do get a second opinion, that never hurts to have anything like this get a second look. but honestly if my experience is anything to go b y I would answer yes go and have it done. It will not heal itself.